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The life of a family with a disabled child from a psychosomatic point of view.
NĚMEČKOVÁ, Klaudie
Any kind of illness or disability has influence on the whole family, not just on individual. The whole situation,values, norms and the lifestyle of the family members changes. Taking care of disable child is usually exhausting physically and psychically. There could be feeling of guilt, emotional trauma and questions -"Why is my child disabled?". It is individual how would each family member accept this fact. If it is long-term there could be psychosomatical problems. That's why it is very important to take care our mind, so that's how we can stay positive. The bachelor thesis deals with the difficulty of taking care of disabled child and let people know more about it. It should alert about psychical, somatical and psychosomatical problems, which could appear at parents or siblings, who are often left out and have to help their brother or sister. The next task is to find out the options of family psychohygiene and how could we help when the psychosomatic problems appear. The next task is connected with social workers, who cooperate with the disabled families. I would like to find out how difficult is to work with this families and describe how to help and proceed the prevention. The theoretical part deals with families, disability, beginning of psychosomatical problems, options of prevention and how to solve them. The empirical part presents acquired data, summary and answers on research questions. The research was qualitative, data were acquired while interview, the method of data processing was qualitative content analysis. The results show that it was very traumatical for parents to accept the fact about their child diagnosis. The health of family members was affected due to the exhausting care. Parents often perceive the negative approach to their-selves. They don't have enough information about the disability and other help. This bachelor thesis could be useful for society and familes as a source of information. It could help doctors and social workers as well. It could show them that taking care of these children is very difficult and the emotional part should't be forgotten. Society, doctors and social workes should think about parents as very important people. To live in these conditions is not easy and it is necessary to have time for their-selves.
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Family support after the birth of a child with a disability
Brothánková, Aneta ; Kotvová, Miroslava (advisor) ; Komorná, Marie (referee)
This diploma thesis deals with the topic of possible family support after the birth of a child with a disability. The work is divided into theoretical and practical part. In the theoretical part, a literary search was created, based on Czech and foreign professional literature. In the practical part, the research questions were evaluated within the created questionnaire, intended for families of children with disabilities, conclusions and recommendations for practice were formulated. KEYWORDS child with disability, support, care, family
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Analysis of examples of the process of coping the family with the birth and subsequent care for a child with severe disability
NÁVRATOVÁ, Jana
This bachelor thesis deals with the analysis of examples of the process of coping the family with the birth and subsequent care for a child with severe disability. The theoretical part of the thesis analyzes four types of disorders: Down syndrome, microcephaly, vigile comatose and Rett syndrome. First, these disorders are characterized and subsequently their causes, diagnosis, treatment, etc. are listed. The practical part informs about the results of the research using case studies. The strategy of qualitative research was determined, the method used is questioning and the technique of semi-structured interview. The discussion points to the appropriate practice of doctors in communicating a serious diagnosis to parents. The process of coping with a child's disability makes it difficult for parents, has a major impact on the family's lifestyle and educates them to verify the quality of the marital relationship. The involvement of his siblings, the wider family and the contacts with the surrounding society and its help play a significant role in the care of a child with disabilities.
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Selected Technigues in Canine therapy of Children with disability
SOUSTRUŽNÍKOVÁ, Lucie
Canistherapy is one of the rehabilitation methods. It serves for support of psychosocial health of people of all ages, using relationship between a dog and a man. This work is dealing with canistherapy techniques for children with disabilities. The aim of my thesis is to find out which techniques are the most used in the centre Bazalka, o. p. s. and the devide Hafík, z. s. and how the canistherapy is affecting health of children with disabilities. The theoretical part is devoted to history of canistherapy, to canistherapy techniques for children with disabilities. Further in the work there is a characterisation of development of a healthy child and a child with disability, from 3 to 7 years old. The practical part consists of a quantitative research, which was carried out in form of an interview between parents of the children with disabilities and their therapists. The research is evaluating the children's health after going through canistherapy techniques and monitoring how often the volunteer were visiting the institution.
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Availability of physical activities for children with disabilities in their leisure time in Strakonice
ZELENKOVÁ, Eva
The goal of this thesis is to analyze the possibility of integration for children with visual-, mental-, and hearing- disabilities between the ages of 8 to 15 years into the offer of physical leisure time activities in the Jindřichův Hradec area. The theoretical part deals with the concept of disability, its characteristics and classification and the classification and characteristics of visual-, mental-, and hearing disability. Another component of the theoretical part is the characteristics of the Jindřichův Hradec area and the definition of the concept of a physical leisure time activity. The practical part of this thesis focuses on the very research done in the Jindřichův Hradec area. The research survey was done in a form of a questionnaire survey. 22 Trainers, 15 children with disabilities, 30 intact children, 15 parents of disabled children and 5 Directors took part on the research survey. Research assumptions "that the offer of leisure time physical activities for children with different types of disability is sufficient" were not confirmed. Although 100 % of trainers of leisure-time physical activities hold opinion that children with disabilities should definitely have an opportunity to integrate into leisure-time physical activities, but 55 % of them cannot offer to children with disabilities the option of integration. It is also due the fact that 40 % of trainers have no sports qualification. Intact children as well as children with disabilities are for integration of children with disabilities into leisure time physical activities. The same is true also for parents of children with disabilities who even do not insist on special sports qualification of trainers.
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Availability of physical activities for children with disabilities in their leisure time in Písek.
STÝBLOVÁ, Martina
Intention of this bachelor thesis is to examine and to analyze possibilities of integration children aged 8 - 15 years with mental, visual and hearing impairment disabilities in district Písek. This work is divided in theoretical part that explains general view of the term disabilities of children, outlines the importance of integrating children with disabilities to the society with intact children. The characteristic and classification of mental, visual and auditory disabilities are explained and at the same time the possibilities of using suitable sports for individual levels of handicap are described. Theoretical part also describes the district Písek and its offer of free time motion activities. At the same time the meaning and importance of free time activities with reference to healthy style of life is emphasized. In practical part a survey is performed. 18 coaches, 25 children with disabilities, 28 intact children and 7 directors from schools and sports facility participated in the survey. Based on the opinions of coaches and specialized workers, most of them agrees with integration of children with disabilities to the motion activities with intact children. However they aren't able to provide special lead of these activities, because 44 % of them does not have sports education. The excellent report was a clear 100 % agreement on the integration of disabled children by all school heads and sports schools. And they confirmed the answers from children with disabilities, and 52 % of children would like to engage in physical activity with intact children.
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'We're such a normal family, only we have that Jamie' System approach to studying families with a handicapped child
Mičínová, Veronika ; Hájek, Martin (advisor) ; Volek, Martin (referee)
The bachelor thesis deals with the problems of family coexistence in families with a handicapped child. It discusses how the disability of the child manifests itself in the life of the family as a whole and in the lives of every single family member. The first part presents actual findings about families with a child with disability, submits both negative and positive impacts of such coexistence on individual family members, namely on parents, siblings and grandparents. Subsequently it introduces a system approach to studying a family, which understands the family as a complex comprised of interacting units. The research reveals that order and organization in the light of time and division of labor or responsibilities are important factors in the life of such families. On that account it is necessary to define individual family roles properly, which helps ensuring stability and functionality of a family system. Further it comes to conclusion that due to the presence of a handicapped child, changes in the organization of the family system occur; the child turns into a sort of a family center to which others adapt. A child with disability occupies a special status of 'member - non member', because it can be situated neither into basic family subsystems nor into subsystems based on gender. The...
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The attitude and the role of siblings of children with strong mental handicaps in a family.
TŮMOVÁ, Gabriela
This dissertation is focused onthe role of siblings of children with severe health disability and the position they take within a family. The main objective was to find out what role and position healthy children and their siblings with disability take with each other. I decided to focus my main research questionon "If & howthe role and position of a healthy sibling towards a sibling with a severe health disabilitytransformed during adolescence". The theoretical part of the dissertation focuses on the family, its function, upbringing styles and types of contemporary families. Furthermore I also focused on health disability. I defined a physical and mental disability, identified the difference between congenital disability and disability gained during life. I also looked in depth into cerebral palsy. Apart from this disability I also briefly looked into neuromuscular and other muscular diseases and orthopaedic disability. The next part of my theoretical study concerned a family with a disabled child. Here I focused on the very important process of coming to terms with the birth of a child with disability as described by well-known Swiss- American doctor Elisabeth Kübler-Ross. Last but not least I looked at siblings of a child with a disability, their inter-relationship withthe disabled child and how the child copes with their impairment. Considering the number of respondents and openness of the questions I have opted for qualitative research. This consisted of eight respondents whom I know personally and were willing to participate in my research. Data collection took place by means of prepared questionnaires that I sent by e-mail. All respondents were made aware ofthe topic of my dissertation, its objective, research question and that anonymity would be provided on the information given in questionnaires about which some of them had inquired. I opted for questionnaires because some of the respondents were currently overseasor due to various other reasons were not able to meet in person. I asked open questions hence, without the option of choosing an answer. That way the respondents had completely unrestricted opportunity to express their opinion. This dissertation could be beneficial to the siblings of children with a severe health disability themselves who could see this issue from theperspective of other siblings. It could also help parents of children with a health disability to realise how this issue is perceived by a healthy sibling.
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Availability of physical activities for children with disabilities in their leisure time in Prachatice area.
VALENTOVÁ, Marie
This thesis deals with current availability of physical activity for children with disability age 8-15 in Prachatice region in their leisure time. It is divided into two main parts. The theoretical section is focused on specific terms regarding mental, visual and hearing disability. Practical part is concentrating on main research. The questionnaires were introduced to school masters, sport instructors, children with disability as well as intact children and disability children's parents. The research focused on availability of leisure time physical activity, which is quite extensive for children with hearing and mental disability compare to ones offered to children with visual disability. Through the survey was discovered that 35% of the instructors are without professional sport education, 65% instructors are trainer license holders or physiotherapist. Research also studied possibility of integration children with disability.
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